Fibromyalgia pain

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Fibro pain

Post  shellie209 on Sun Oct 18, 2009 1:42 pm

I have done alot of research for reducing the pain for our disease. If your like me, you want some relief from the pain(all the pain would be nice but alittle is realistic). There are several things listed. I new thing came out. I have tried it but I don't use it because with fibro it hurts. It is called tapping. If you want to try it go to www.tapping.com. They give excellent instructions on how to use it. If your skin is very sensitive I wouldn't try it. Taking vitamins and eating right has been good for me. I even tried a new thing called StemTech. Which is using two natural blend of two botanical components extracted from Aphanizomenon fios-aquae, which supports the natural release and migration of stem cells in the body, therby assisting in the maintenance of optimal health. I have been taking it for almost an year(November 17,2008 will be a year). I went from being on the couch or bed every day to having more energy and doing more things like a normal person. There are days when I don't feel like gettting up but once I do and start moving, my muscles and joints loosen up. I feel better. If you would like more go to www.shellietheodoratos.stemtechbiz.com. I also sale it as well as I take it. I hope this helps someone else who is suffering.

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Been on most pain killers, etc. and...

Post  Tammy Elaine on Fri Oct 16, 2009 6:23 pm

that includes, Lyrica, soma, neurontim, methadone, fentanyl, hydrocodone, percocet and now - Savella (or milnacepran). The last for only just over a month and from what I can tell, it's about as useless as Lyrica is, minus the awful weight gain. I'm seeing a new, (and useless) pain specialist here in NC...I just can't seem to get a good dr since my move! But anyway, he is prescribing the Savella with a 25mcg Fentanyl patch. Without my leftover neurontin I'd be in "shoot myself in the head" pain still.

Of all of the meds I've taken, the Fentanyl patch is the best and for me it takes 150mcg every 48 hours to make my pain where I actually can function. Also, good luck getting a doc to prescribe it since they are getting really overzealous and guarded about pain meds here lately. Another note, it is extremely expensive unless you have either medicaid or great insurance.

I read the reply below about hypothyroidism and I feel the need to remind folks that FM affects us all differently. I've had my thyroid THOROUGHLY CHECKED and my counts are fine, so I think it's safe to say that MY FM is NOT caused by that and the common theory that circulated for years that it caused it is true only in very few cases. Where I am prayerfully thankful that this docs' website and treatment helped that lovely lady, I hold firmly in the belief that they haven't figured out what causes FM yet, much less how to cure it and that it is NOT just one thing such as hypothyroidism. I encourage Folks be extrememly careful about online websites that promise a cure for this disease. jocolor

THERE IS NO KNOWN CURE!

On the other hand, the reason for this forum is for the free exchange of helpful info, so if you think you may be helped by that website, I encourage you to at least explore and research the info and thank the poster for bringing it to us all. ALL of us with FM should have their thyroid checked. As a matter of fact, hypo/hyperthyroidism should be eliminated as a possible cause for symptoms prior to an FM diagnosis is made. What a Face

Hope this helps! sunny

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I hope you are blessed with a pain-free day!

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FM pain

Post  shellie209 on Sun Oct 11, 2009 3:49 pm

You know what surprises me is that the doctors don't know what to do about the pain. For one thing that don't understand the pain we have. My doctor want to give me muscle relaxers for the pain. When I take muscle relaxers I can't seem to do a thing(I'm not one to just lay around I have to do things like normal people). So I don't take them unless it is to a point I can't stand it. affraid Then I'm down(in bed for days). Then I'm so weak that I don't want to even check my regular mail box, just outside my house. Anyone have any ideas?

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Relief for pain

Post  Malfred on Fri Aug 14, 2009 1:46 am

Hi - allow me to introduce myself. Very Happy I am 58 years old and live in Brisbane, Australia and have suffered with fibromyalgia for 30 years although it was not diagnosed for 20 of those years. I'd love to share how I have mostly recovered from it and especially the pain and the chronic fatigue. I have a blog site that goes into more detail and there I outline the method I was led through to gain relief. It's not a site where you have to buy anything (just the usual google type ads) but is primarily an information site. But briefly, it's worth checking out Dr. John Lowe's site at www.drlowe.com. His theory is that fibromyalgia is untreated hypothyroidism and/or resistance to thyroid hormone. I looked at EVERYTHING for FMS for years (except Dr. Lowe) and went to a particular doctor for my hypothyroid condition - he treated it in the way Dr.Lowe did and I couldn't believe the change! Within months my muscle pain had gone and over two years my chronic fatigue went. What was frustrating is that for years doctors told me I had nothing wrong with my thyroid (I knew I did) but the blood tests were too narrow and so on and on. I tried drugs, herbals and so forth but the condition just got worse. Have a look at Dr. Lowe. If you are interested in checking out further info on my site then please do. All the best.

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painkillers

Post  Loz1987 on Thu Jul 30, 2009 4:45 am

i pop painkillers like im eating skittles. nothing helps me so far

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Re: Fibromyalgia pain

Post  hellbound on Wed Jul 22, 2009 12:19 pm

When in doubt, it’s ok to ask another doctor’s opinion. If it’s indeed fibromyalgia, don’t worry because pain relievers like tramadol can do the trick. It cuts the edge of pain off so you can still manage your day. Talk to a doctor of your choice about it. Hope this helps.

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Fibromyalgia pain

Post  missionofmercy on Wed Jul 22, 2009 10:37 am

Anyone here have fibromyalgia? My doctor has it. I thought it’s just the usual rheumatism. Anyway, which pain reliever do you have? Mine doesn’t seem to help the attacks. I’m thinking of seeing another doctor for another opinion.

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