Disability with fibro and CFS

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Sniff, sniff

Post  Tammy Elaine on Sun Mar 23, 2008 11:46 am

You made me cry. I am so glad that I could be there for you and girl, your friendship is priceless to me. You are so fortunate that you were able to get your disability and I hope that I get mine...you know how bad I need it. Keep on telling it like it is. I am sure our members will appreciate it. You know, I had panic attacks when my FM first started, right after the IBS began. There are those who will argue that this disease is not "progressive" but I disagree. I hope you will write more abt your approval process as it could help others, LIKE ME, know what to do to win!

Keep up the good work and I hope some of the others will comment abt their experience too. Cool

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Disability with fibro and CFS

Post  peach state on Sun Mar 16, 2008 11:57 pm

I'm relatively new to this forum. I want to let those of you who are new or relatively new to this type of research that I'm real. I have a very chronic disease. For the most part, I have been diagnosed with several different syndromes. I have fibromyalga, chronic fatiguge syndrome, IBS, anxiety, depression, and PTSD.

The first diagnosis that I obtained was fibromyalgia. I really didn't know what it was. I started having a tremendous amount of tingling in my feet when I first put my feet on the floor in the morning. Second, I started getting numbness in my right leg from the knee down. Then my legs started to tremble and I couldn't hardly walk. I was trying to work. I was at a conference with my job. I couldn't climb up the 4 steps to my room. I felt my bones scraping against one another. Needless to say, I absolutely freaked. I called my Dr. and he called in some Soma. All that did was make me go to sleep and make me go to the bathroom. You know what I mean.

Then the pain started in my arms. It radiated all over my body like some unknown organism. I was terrified. Then the panic attacks started shortly thereafter. I went to the emergency room when I called my mama and daddy to my house at 5:30 a.m. in the morning. I thought that I was dying. I called them and told them that I would be in the yard when they got here because I couldn't breathe. Needless, to say, I was having an anxiety attack. The first of many I might add. I was completely terrified of what was happening to me and my body. I couldn't believe it because I've always had control of my life.

My life ended on that day. It took me another 5years to accept that I have a disability. I have suffered mentally, emotionally, and physically with my conditions. I was so fortunate to get disability. However, I want you all to know it takes a very long time to be approved for such a horrible disease that we all have. We all have different degrees of pain. The SSA knows that and you really have to have a severe case of this disease and also coupled with others that go with it to even be "evaluated" at the SSA level. I'm very fortunate that I was approved, however, it also gives me a double "whamy", because it means that I'm extremely sick. For those of us who are out there who really are sick, please continue to read this site. For those out there looking for a way to get out of work; get away from this site. This site is for the true sufferers of our disease. Dont' use us as an excuse to get out of work. This is not why we're here. We honestly want others "like us" to get better.

We can all help each other. This is not some kiddy car we're riding on. This is the real deal. Only the most serious should reply. I can't stand another person acting like everything is fine. I hurt every single day of my life. I want others who hurt like me to let me know. I don't want to think that I'm the only one out there that feels this way. I know that Tammie Elaine doesn't. She was there when others weren't. I was having a horrible painful day and she was there. I responded to her begging for someone to listen to understand. It made me feel so relieved to know that I could really relate to another human being that didn't want to tell me that you can drink "green tea" or some type of stupid mess that doesn't work. We need a cure people!

Look forward to hearing from anyone out there who feels the same desperation that Tammie Elaine and I do.

Belinda (aka......Peach State)
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